morning walk
I was running late for our walk with our neighbor this morning. I was crying so hard I couldn't see the Kleenex to blow my nose. My poor floor. On our walk, my neighbor asked if I had a group of people to talk to about how hard this having a child with special needs thing is. It's not right of me to pick on other people because their problems don't look as big as mine. But, I also don't have to put myself in the middle of the road and get repeatedly run over by the Blogger bus.
I am SO BEYOND THANKFUL that Lu is as healthy and as normal as she is. But that doesn't mean I have bouts of sadness because her colostomy bag shows through her ballet costume or that she will never be able to hold her urine. That BREAKS MY MOTHER'S HEART, and there's not a damn thing I can do about it.
I know I need to be thankful in all curcumstances, and I am working on it. I think I do a pretty good job of that, most days. But some things don't come overnight, and as much as I'd like it to, this thing isn't.
I remember people telling us when I was pregnant with Lucy that we were so strong and trusting. HA! If only they knew. I had Matthew 14:27 on repeat in my head most days of that 5 months, because it's all I could hold onto and stay sane. I'm glad the words of that verse were none the worse for wear - I am needing them again.
I get tired of trying to be strong and trusting. Praying about Lucy's condition won't change the fact that she has it. But I still pray, and I pray for God to give me a heart of thanks.
You know how, sometimes you just want to say something, and not hear, "Well, you should do this, or you should do that"? The other day was one of those days. And yes, I should not have even posted it if I was going to get annoyed by people's comments.
So, I've created an outlet where I can just be totally honest, and share with parents who are going through the same thing. It isn't right to drag everyone along for the ride.
And yes, this blog is a snippet, just as other blogs are a snippet. Touche, to whoever first pointed that out!
So, there we are.



I swear, if it were not for blogging, I would loose my mind. In real life, People are generally sympathetic when my family is going through a "rough patch." But at times I think they get tired of the bad news. So I just clam up and my wife says stuff matter o' factly to her friends. "oh we started cathing...ha ha ha. Everything is fine."
I love reading your blog because it reminds me that we are not alone. It is good knowing that there are people in the world who know exactly what we am going through.
Blogging is healthy. Blogging is good. Long live blogging!
benjamin67 said...
October 14, 2008 9:55 AM
why isn't it right to drag everyone along for the ride?
isn't it more like we all hopped on that bus because we WANT to be here???
Tam
Anonymous said...
October 14, 2008 10:11 AM
So awesome to arrive on your blog and hear the Newsboys song start up, "Shine". I love your writing, I hope that it is soothing to you as you experience this heartache. I can only imagine :(
I hope that you keep on sharing those snippets - they are like nuggets of wisdom.
Ruhiyyih Rose said...
October 14, 2008 11:16 AM
i love reading your blog! i am reminded again that we do need outlets in our lives to deal with whatever comes. i am so blessed at how "real" your thoughts are, and how eloquently they are written. I read daily but dont comment due to not being able to get the comment box to work via my phone. keep up the good blogging! it encourages me in my moments of weakness.
jkmantz said...
October 14, 2008 11:32 AM
You are not dragging. I WANT to hear the true feelings, the tough stuff. I want to share that type of stuff with people.
You know....what gets me is this idea that if you are jealous, sad, heartbroken, etc then you cannot be grateful at the same time. Of course, you are grateful for your sweet girl's health. That does not cancel out the fact that what you deal with and what she deals with is heart-wrenching. It is more than heart-wrenching. On the scale of crappy things in life it is off the charts crappy. It is so crappy that I would use another word for it but this is not my blog so I will not use profanity. It just is.
And you know what? I think that if Jesus was sitting right in front of you he would say, Rach this is horrendous. I am so sorry. And he would weep. He is weeping. His heart is breaking with yours. He would not point out the positives. He would hold you in his arms and weep with you and tell you how much this really sucks. Sorry if my use of the word "sucks" in this context offends I just truly cannot come up with any better word that is socially acceptable. He would not offer you well-intentioned yet painful platitudes.
And he will be with you also during the times of joy. He will laugh and dance with you when you find unexpected joy or arrive at an unexpected sunny place.
Please keep writing the truth. I do not have experience with the things you are going through but I learn from you and I also enjoy knowing the real you.
Thirsty Girl said...
October 14, 2008 6:44 PM
please don't stop being real. i love you. signed, thirsty girl's mother
Anonymous said...
October 14, 2008 11:41 PM
oh, i agree with thirsy girl. keep sharing and spilling from your bucket that you catch your rain water with, the water that spills over and out from your heart when bumped with life's tidal waves...it has to go somewhere...when you empty your bucket and share it with others, it leaves you more room in the bucket to receive more from the Giver of that water, if you didn't give it away, there would be no room for more, you would reach your limits..and when you share it with others, it blesses us immeasurably i promise...i love you. keep it real, or keep it to yourself, but never apologize for sharing your heart or spilling it over into our lives...we are here with open arms, open hearts and holding our own dang buckets as well! love you.
Alyssa said...
October 15, 2008 1:36 PM
We were all just acting like men-wanting to "fix" it for you. Your feelings were and are completely normal. I do not post a lot of my feelings because of family readers as well.
today is the present said...
October 15, 2008 6:45 PM
I guarantee you 100% that the people who got all judge-y on you about being jealous are a bunch of noodle-salad eaters.
And the people who were compassionate and understanding are NOT.
As I've said many times before, the surgeries and junk terrify me, but the things that threaten my son's quality or normalcy of life simply break my heart. And you have every right to be heartbroken and jealous of those who aren't.
Be thankful, too. Yeah, that's great. But being honest and open about the not-so-pretty feelings that come along with this package is what really HELPS you, me, other parents dealing with the same crap, and maybe even some of those noodle salad eaters.
Keep it comin'.
- becca
Rebecca Batey Fradin said...
October 18, 2008 12:59 PM
Am I right in thinking that Lucy was born with an imperforated anus? My firstborn son had the same thing. He`s 3 now and has had his colostomy reversed now, but we still deal with the problems caused by scar tissue in the intestines, which tend to block things up.
One thing I`ve learned by talking to other parents is that even if your kid has something different . . . they`re growing up and they are fine. Lucy is a beautiful little girl and she looks like she`s thoroughly enjoying life. I see nothing wrong with blogging about that!
Expat Mom said...
February 11, 2009 6:31 AM